28 October 2021
My Name is Cinnamon. A Book by Vikas Prakash Joshi
My Name is Cinnamon” (forthcoming Hay House 2022) is an adventurous tale of a little boy whose life is nothing short of a roller-coaster ride.
Read 1
14 September 2021
“How I feel, how I cope and how I adapt…” Stargardt disease
Stargardt disease affects one in ten thousand people and I am that one… Hi, I’m Elise and I have lived every day for the past ten years of my life with a life-altering rare genetic eye disease.
Read This letter is only available in italian.
Read 25 May 2021
A Blind Patient Regained Partial Sight in a Breakthrough Study, Offering Hope to Millions
Original post on TIME Magazine
The darkness descends slowly for people with retinitis pigmentosa (RP), a degenerative eye disease that affects 2 million people worldwide.
Read If someone with a visual impairment lives with you — or if you’re facing some level of blindness yourself — modifying your home makes it easier to navigate and safer to live in.
Read Orignal Post here
ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome and Plans to Start Pivotal Trials QR-421a demonstrated a concordant benefit in multiple measures of vision, including best corrected visual activity (BCVA), static perimetry, and retinal imaging (OCT)
QR-421a observed to be well tolerated with no serious adverse events reported
Two pivotal Phase 2/3 trials are expected to start by the end of 2021
Management to host a conference call today at 8:15am EDT LEIDEN, Netherlands & CAMBRIDGE, Mass.,
Read 25 March 2021
Loss of sight is a grief
Loss of sight is a grief for those who experience it. We must then be able to escape from the gloomy clutches of depression.
Read 15 March 2021
Technologies for the autonomy of the blind: when the disable person becomes homo technologicus
On his website and personal blog, Giuseppe di Grande made an interesting roundup of the “bullshit”, as he defines it, that students, companies and startups have invented in recent years for the blind.
Read 4 February 2021
Music is invisible to the eye
February is the low vision awareness month.
We wrote about this in this article.
This year we want to celebrate this month dedicated to low vision awareness with music.
Read 