sindrome di usher

Beeing an Usher: Like fishes in the sea. The importance of self-help groups

Being disabled means a big responsibility with yourself. You never stop to measure with the future and with others, with…

Thursday September 22nd, 2011

Usher Syndrome worldwide: The best wepages written and/or created by Usher people

When it comes to finding information in general, most people use the internet. Of course, it also applies to search…

Friday July 22nd, 2011

Usher Syndrome and Facebook. The best and most followed pages to be always updated on Retinitis Pigmentosa and Hearing Loss

Almost all those who are suffering from rare and incurable diseasefeel the need to be in touch with others and…

Friday July 1st, 2011

Psychological aspects related to Usher Syndrome. How low vision and hearing loss transform the personality

Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to…

Saturday June 25th, 2011

When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa

Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on…

Wednesday June 15th, 2011

Dating and Usher syndrome. Implications of visual and hearing impairment

When I was about 23 I began to realize that soon I should put the driving license between the memories…

Monday June 13th, 2011

How social media can help on disability

Social. It might seem that the relationship between social media and disability is implicit in the term, because often when…

Saturday May 28th, 2011

Useful tips for those who live and work with a deaf person with retinitis pigmentosa

In our Facebook page, which gradually increases its ‘Like’ we have recently opened a discussion in italian and one in…

Sunday May 15th, 2011

Usher Syndrome no limits: Bill Barkeley knows how to do it, and you?

I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his…

Tuesday May 10th, 2011