The content in this page is take from the Usher Syndrome Coalition website and it is of their property. We…
My Name is Cinnamon” (forthcoming Hay House 2022) is an adventurous tale of a little boy whose life is nothing…
Orignal Post here ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome and Plans to Start Pivotal…
Transcript of the presentation during USH2020Connections Week, organized by the Usher Syndrome Coalition. Watche the video presentation here, with caption…
Retina International Usher Syndrome Special Interest Group Spring Newsletter - Update on events & news relevant during the COVID-19 pandemic…
Original article on AP News QR-421a showed early and encouraging evidence of activity, with 25% of patients showing a benefit…
In the month of August 2019 a very interesting and important research study on the life strategies of people with…
On December 2nd Retina International sent the RI USH SIG Winter Newsletter We are happy to send you the RI…
Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video "Usher Syndrome. Game Over"…