When it comes to finding information in general, most people use the internet. Of course, it also applies to search for news, treatments, people associated with the diseases, in this case of Usher syndrome.
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12 July 2011
Visually and Hearing impaired: it is expensive!
Some time ago I came across a video where a deafblind lady makes some interesting considerations associated with visual and hearing disabilities, pointing out how expensive it is to be deafblind.
Read 15 June 2011
When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa
Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on your shoulder, and often say: “I’m sorry …” as if there was some grief to deal with; two of the psychotherapist I went, when I told them my night misadventures held a look, like when you see a dog without a leg, or a deadpigeon on the street, an abandoned kitten, something like that.
Read When I was about 23 I began to realize that soon I should put the driving license between the memories of the past.
Read I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his photos and clips.
Read In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader wrote a comment that deserves greater visibility.
Read In a previous article we discussed the difference between being blind and being visually impaired. For the ‘lucky‘ people with Usher Syndrome the problem are double.
Read 28 April 2011
I have a rare disease. Luck is blind, but me too
To understand how rare Usher Syndrome is, we try to compare some data.
(Unfortunately, no data are verified and confirmed.
Read Helen Adams Keller was an American writer, activist and teacher, deaf-blind since the age of 19 months. Her story and that of her teacher Anne Sullivan, it is surprising and unique, for will, determination and strength, so as to have inspired several movies (Deliverance, The Unconquered, Anna dei miracoli, The Miracle Worker).
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