A groundbreaking awareness campaign to change the future of Usher syndrome “Every Second Counts” is a call to action and…
This story is one of those that must be told. In great detail. In 2017, before the summer, I got…
Orignal Post here ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome and Plans to Start Pivotal…
Watch the video presentation with Caption or in ASL here You can also download the script. Presentation Summary: A presentation…
Transcript of the presentation during USH2020Connections Week, organized by the Usher Syndrome Coalition. Watche the video presentation here, with caption…
by Mark Dunning Original article appeared on Usher Syndrome Coalition Website Thanks to genetic testing, we are now able to…
International Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined…
It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address…
https://www.youtube.com/watch?v=IVZbfr_plWk Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in…