by Mark Dunning
Original article appeared on Usher Syndrome Coalition Website
Thanks to genetic testing, we are now able to identify children with all types of Usher syndrome at a much younger age.
Read In the month of August 2019 a very interesting and important research study on the life strategies of people with Usher Syndrome type 2A was published in Sweden.
Read In June 2018 I had the pleasure of meeting Krister Inde in person. We were in Laško, Slovenia, both invited as speakers at the first low vision conference organized by the European Blind Union, the voice of the blind and partially sighted people in Europe
The thing that struck me about Krister is the lightness with which he speaks about visual impairment, not just with words, but with all of himself.
Read Blindness and Low vision can affect personal autonomy and the ability of spatial orientation. This impairment compromises functions that allow the detection of visual information over long distances and consequently anticipatory behaviors.
Read I have not written about music yet.
In a blog of/for the deaf and hearing impaired (and blind and visually impaired) it should have be a topic of prime importance to deal with at the third post or so.
Read As we talk we don’t pay attention to the synonyms of our language and we use them almost carelessly. Apparently.
Read Those who wear hearing aids know that. Children feel different, the only ones in the class to have something behind the ears.
Read Some time ago I came across a video where a deafblind lady makes some interesting considerations associated with visual and hearing disabilities, pointing out how expensive it is to be deafblind.
Read Sorry, this entry is only available in Italian
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