16 January 2020
What do I do now?
Translated from Italian by Elisabetta Vianello.
Here is another one story. They all look the same and are all different.
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13 January 2020
Usher Syndrome Organizations in the world
International
Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness.
Read 11 December 2019
Life strategies of people with deafblindness due to Usher syndrome type 2a – A qualitative study
In the month of August 2019 a very interesting and important research study on the life strategies of people with Usher Syndrome type 2A was published in Sweden.
Read 5 December 2019
RI USH SIG Winter Newsletter
On December 2nd Retina International sent the RI USH SIG Winter Newsletter
We are happy to send you the RI USH SIG Winter Newsletter providing you with an update of the latest and upcoming news relevant for people living with Usher Syndrome and with a resource file on USH subtypes, genetic testing and USH genes.
Read 17 November 2019
NoisyVision at Accessibility Club Summit 2019
Today Dario Sorgato, founder and chairman of NoisyVision, attended the first of the two days of the Accessibility Club Summit 2019 at the Microsoft Atrium Berlin
The program looked very interesting, and so the people providing the different sessions, but to be there was a true learning experience.
Read 31 October 2019
Giggle Reader View: A new way to search the web.
Inspired by putting visually imparied people first, Reader-view creates a new way to search the internet.
Typically when people search the web for content to read, the process consists of two separate tasks: guessing which link is going to be the best one to click, and then reading the articles.
Read Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video “Usher Syndrome. Game Over” on our social media channels.
Read ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a mutation in a specific part of the USH2A gene, called exon 13.
Read Tales in Sombre Tones is an exciting new touring show with the specific aim of opening up art and literature for all.
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