29 February 2020
I am rare. Actually unique. Rare Disease Day
“When I found out I was stunned. It was clear that it was #rare but I didn’t think so rare.
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26 February 2020
Rare Diseases, Zero Discrimnation and Hearing. Three International Days we celebrate.
These three important celebrations are one after the other and in a way or another they relate to us and what we do.
Read 25 February 2020
Vision, Hearing, Happyness. Events we celebrate.
Here is the calendar of events, international days that interest us and that we want to celebrate in a different way during the year.
Read 14 February 2020
Inclusive trekking on the Via Ghibellina, from Florence to Poppi
Our journey through history starts ideologically from Florence and practically from Bagno a Ripoli in an itinerary that alternates cypresses and farmhouses, vineyards and olive groves, tabernacles, majestic Medici villas and beautiful cave churches.
Read 11 February 2020
Research projects supported with our fundraising.
February is low vision awareness month and therefore it is the right time to give you this important news. In fact, through our channels we urged supporters to organize Facebook fundraisers in favor of NoisyVision, clarifying that all the funds raised will be donated to research on retinal dystrophies.
Read 3 February 2020
Low Vision and Legal Blindness Terms and Descriptions
Facts about Low Vision
Most surveys and studies indicate that the majority of people in the United States with vision loss are adults who are not totally blind; instead, they have what is referred to as low vision.
Read 1 February 2020
February, low vision awareness month
According to several sources, including the Foundation Fighting Blindness (one of the most authoritative organizations to combat eye diseases) and National Eye Institute February is low vision awareness month.
Read 31 January 2020
How many are the senses of the human being?
“You have a sixth sense” it is said attributing someone else a sort of super-power, which goes beyond the canonical five senses.
Read by Mark Dunning
Original article appeared on Usher Syndrome Coalition Website
Thanks to genetic testing, we are now able to identify children with all types of Usher syndrome at a much younger age.
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