When it comes to finding information in general, most people use the internet. Of course, it also applies to search for news, treatments, people associated with the diseases, in this case of Usher syndrome.
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20 July 2011
Why is it embarrassing to wear hearing aids?
Those who wear hearing aids know that. Children feel different, the only ones in the class to have something behind the ears.
Read 19 July 2011
Through the limits and beyond
NoisyVision is a non-profit organization that helps people share resources and skills to improve the quality of life and the inclusion of those who have visual or hearing limitations.
Read 12 July 2011
Visually and Hearing impaired: it is expensive!
Some time ago I came across a video where a deafblind lady makes some interesting considerations associated with visual and hearing disabilities, pointing out how expensive it is to be deafblind.
Read Sorry, this entry is only available in Italian
Read Almost all those who are suffering from rare and incurable diseasefeel the need to be in touch with others and find information on research, treatments, therapies and technologies, but in many cases the disease is so rare that it is not easy to meet personally someone with the same physical, psychological and social, conditions to exchange point of views, suggestions and experiences.
Read 25 June 2011
Psychological aspects related to Usher Syndrome. How low vision and hearing loss transform the personality
Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to be underestimated.
Read I state (and repeat) that Noisyvision is not a scientific website and information are based on experience and research of individual editors.
Read 15 June 2011
When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa
Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on your shoulder, and often say: “I’m sorry …” as if there was some grief to deal with; two of the psychotherapist I went, when I told them my night misadventures held a look, like when you see a dog without a leg, or a deadpigeon on the street, an abandoned kitten, something like that.
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