Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video "Usher Syndrome. Game Over"…
ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a…
Tales in Sombre Tones is an exciting new touring show with the specific aim of opening up art and literature…
RI USH SIG launches newsletter Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter…
NEPTUNE LIKES IT YELLOW #YellowTheWorld goes by sea From August 24th to 31st 2019 aboard Adriatica, the boat of Velisti…
Due tothe positive result of his previous project on audio description, Cesar returns for his second research project! NoisyVision contributed…
On the other side there are them, volunteers or professionals. Everyone who works to help people with visual difficulties. One…
How many times have we found ourselves mistaken for impostors or feeling unrecognized in our potential or difficulties? It happens…
It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address…
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by…