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When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa

Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on…

Wednesday June 15th, 2011

Dating and Usher syndrome. Implications of visual and hearing impairment

When I was about 23 I began to realize that soon I should put the driving license between the memories…

Monday June 13th, 2011

Learning sexuality with deafblindness Posted on June 11, 2011 by dario

SELECTION OF ARTICLES • Sex when you’re disabled • Although it would be great to say that disability should have no bearing…

Saturday June 11th, 2011

How social media can help on disability

Social. It might seem that the relationship between social media and disability is implicit in the term, because often when…

Saturday May 28th, 2011

Disability and movies: Children of a lesser god

” below the surface level of a movie for the deaf lies a movie for the intelligent. In a form…

Friday May 27th, 2011

Useful tips for those who live and work with a deaf person with retinitis pigmentosa

In our Facebook page, which gradually increases its ‘Like’ we have recently opened a discussion in italian and one in…

Sunday May 15th, 2011

Usher Syndrome no limits: Bill Barkeley knows how to do it, and you?

I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his…

Tuesday May 10th, 2011

How to survive the Usher Syndrome. Ruggero has five suggestions

In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader…

Friday May 6th, 2011

I am not deaf. I am hearing impaired. What I hear and what I don’t.

In a previous article we discussed the difference between being blind and being visually impaired. For the ‘lucky‘ people with…

Tuesday May 3rd, 2011

I have a rare disease. Luck is blind, but me too

To understand how rare Usher Syndrome is, we try to compare some data. (Unfortunately, no data are verified and confirmed.

Thursday April 28th, 2011