When it comes to finding information in general, most people use the internet. Of course, it also applies to search for news, treatments, people associated with the diseases, in this case of Usher syndrome.
Read Those who wear hearing aids know that. Children feel different, the only ones in the class to have something behind the ears.
Read Some time ago I came across a video where a deafblind lady makes some interesting considerations associated with visual and hearing disabilities, pointing out how expensive it is to be deafblind.
Read Sorry, this entry is only available in Italian
Read Almost all those who are suffering from rare and incurable diseasefeel the need to be in touch with others and find information on research, treatments, therapies and technologies, but in many cases the disease is so rare that it is not easy to meet personally someone with the same physical, psychological and social, conditions to exchange point of views, suggestions and experiences.
Read Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to be underestimated.
Read I state (and repeat) that Noisyvision is not a scientific website and information are based on experience and research of individual editors.
Read Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on your shoulder, and often say: “I’m sorry …” as if there was some grief to deal with; two of the psychotherapist I went, when I told them my night misadventures held a look, like when you see a dog without a leg, or a deadpigeon on the street, an abandoned kitten, something like that.
Read When I was about 23 I began to realize that soon I should put the driving license between the memories of the past.
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