Retina International Usher Syndrome Special Interest Group
Spring Newsletter – Update on events & news relevant during the COVID-19 pandemic
RI USH SIG
Dominique Sturz (AT), Melissa Chaikof (US), Carol Brill (IRL), Dario Sorgato (IT)
We hope that you are all fine and healthy despite the COVID-19 pandemic.
Read I wish to share this work of art with friends and followers of NoisyVision.
It might seem born from the connection between the themes addressed in the last two Facebook LIVE of Yellow Happy Hour.
Read Original article on AP News
QR-421a showed early and encouraging evidence of activity, with 25% of patients showing a benefit across multiple concordant outcome measures and was well tolerated with no serious adverse events — QR-421a is the second ophthalmology program where clinical activity was predicted by translational models, further validating the platform — COVID-19 pandemic expected to impact timelines for the pipeline — ProQR anticipates its cash runway will fund operations into H2 2022
LEIDEN, Netherlands & CAMBRIDGE, Mass.,
Read Being blind means having dinner with a packet of crackers because you have not found someone to accompany you to the grocery store.
Read For people could close their eyes to greatness, to horrors, to beauty, and their ears to melodies or deceiving words.
Read When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand which were the consequences of this disease and realize that it is one of the main causes of deaf blindness.
Read Yesterday I decided to try not to read news, articles, numbers.
It is difficult because the situation evolves rapidly and differently depending on the city, region, country in which you are located.
Read The situation we are experiencing in these days following the stringent restrictions to limit the spread of the coronavirus, leads us to reflect on the words that are used on various newspaper headlines, which are not already known.
Read “When I found out I was stunned. It was clear that it was #rare but I didn’t think so rare.
Read 