Blog

The Role Of Rna Therapies In Usher Syndrome (USH2A Update)

Watch the video presentation with Caption or in ASL here You can also download the script. Presentation Summary: A presentation…

Tuesday October 27th, 2020

The Best Hearing Technology for Usher Syndrome,

Transcript of the presentation during USH2020Connections Week, organized by the Usher Syndrome Coalition. Watche the video presentation here, with caption…

Monday October 19th, 2020

Yellow, the color of inclusion.

We have been hearing about yellow for some time. You see yellow everywhere. In this la Repubblica article it was…

Sunday September 27th, 2020

Paint It Yellow: #YellowTheWorld goes overseas

A group of Scout Girls, Girl Scouts Nation’s Capital Troop 1673 decided to initiate a challenge with the name PAINT…

Saturday September 26th, 2020

Malerweg, walking to conquer the picturesque.

If it is called the Painters' Path it will be because it is picturesque. Easy. The definitions of "picturesque" are…

Saturday June 6th, 2020

The Travelear app: Virtual Travel for Everyone

The experience of travel should be experienced by everyone, but opportunities to do so are often limited. This is where…

Wednesday May 27th, 2020

RI USH SIG – Spring Newsletter

Retina International Usher Syndrome Special Interest Group Spring Newsletter - Update on events & news relevant during the COVID-19 pandemic…

Wednesday May 13th, 2020

Arcobalegno (Rainbowood) or #EverythingWillBeBetter

I wish to share this work of art with friends and followers of NoisyVision. It might seem born from the…

Monday April 20th, 2020

QR-421a: Showing Benefits on One out of Four Usher Syndrome patients

Original article on AP News QR-421a showed early and encouraging evidence of activity, with 25% of patients showing a benefit…

Thursday April 2nd, 2020

Netblind, the App that helps the blind to find a volunteer

Being blind means having dinner with a packet of crackers because you have not found someone to accompany you to…

Monday March 30th, 2020