Elizabetta Vianello is a member of NoisyVision since just a few days but she seems to embody and live in a perfect way those who are our principles: to go beyond the limit, awareness and acceptance of limits.
Read In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It was even entered into the Congressional Record!
Read On the 14th October 2018 Victor will run the GENERALI MÜNCHEN MARATHON. Victor is blind as a consequence of Retinitis Pigmentosa, a rare genetic disorder that involves a breakdown and loss of cells in the retina.
Read Here is a collection of videos that explain how a person with low vision sees.
It is ofteh nard to explain to other people how you see, but surely these videos are helpful to understand Retinitis PIgmentosa, Stargardt or Macular Degeneration.
Read Original post published on Blacklane Blog
We were proud to sponsor the Inclusive Tandem Ride, giving people, who would otherwise not be able to, the chance to enjoy a bike ride.
Read Last week the International Symposium on Usher Syndrome was held in Mainz. It was a 3-day event, we only attended the patient’s symposium as I was afraid that the 2 scientific days would be too complicated to follow anyway (and I would be braindead before the patient program even started…).
Read There are days that I intend to shape my thoughts into words, to write a coherent post that is also logical and illuminating.
Read Like an alchemist, Nadia knows how to distill the emotions that the passageway, la Via degli Dei, intended. She has the capacity to write what others only know how to feel and experience.
Read By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no motivation of ever meeting my soulmate.
Read 