In the month of August 2019 a very interesting and important research study on the life strategies of people with…
On December 2nd Retina International sent the RI USH SIG Winter Newsletter We are happy to send you the RI…
Inspired by putting visually imparied people first, Reader-view creates a new way to search the internet. Typically when people search…
ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a…
Tales in Sombre Tones is an exciting new touring show with the specific aim of opening up art and literature…
RI USH SIG launches newsletter Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter…
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by…
https://www.youtube.com/watch?v=IVZbfr_plWk Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in…
Over the last couple of years the Usher Syndrome Society has been collecting portraits and stories of people of all…
Attendees describe this conference as "life-changing," an event with a positive atmosphere and a genuine sense of community. At the…