Original post on TIME Magazine The darkness descends slowly for people with retinitis pigmentosa (RP), a degenerative eye disease that…
Orignal Post here ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome and Plans to Start Pivotal…
Loss of sight is a grief for those who experience it. We must then be able to escape from the…
On his website and personal blog, Giuseppe di Grande made an interesting roundup of the "bullshit", as he defines it,…
February is the low vision awareness month. We wrote about this in this article. This year we want to celebrate…
The annual observance of the International Day of Disabled Persons was proclaimed in 1992 by United Nations General Assembly resolution 47/3.…
When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand…
Yesterday I decided to try not to read news, articles, numbers. It is difficult because the situation evolves rapidly and…
The situation we are experiencing in these days following the stringent restrictions to limit the spread of the coronavirus, leads…
"When I found out I was stunned. It was clear that it was #rare but I didn't think so rare.…